The Allen DeDon Osteosarcoma Research Fund is in honor and memory of Allen. MIB Agents everywhere worked on and contributed to MIB MISSION: ALLEN. His mission was to travel to the mountains of North Carolina to go White Water Rafting with his family. As is the Agent way, Agents everywhere delivered an experience that exceeded his expectations. Allen DeDon passed from this life on July 18, 2018, shortly after his MISSION was accomplished.
From Allen’s Family:Allen was amazing, he was a fighter and had a spirit for adventure, no tree was ever too high for Allen to climb and he loved playing sports. Allen fought osteosarcoma for 2 years and never once stopped smiling or joking and his favorite person to pick on was his mom, who he regularly made jokes about. He enjoyed building things with his dad and no one could ever tell what the final result would be until it’s finished. Allen had a light so bright everyone saw it when they met him and he was determined to make a difference in the world around him and in the lives of other children who are fighting the same fight he fought. One day no child will ever suffer because of Allen.
FACTOR brings together the leading researchers, clinicians, surgeons, together with patient families and OsteoWarriors to Make It Better for those battling this disease.
Each year a grant of $100,000 is awarded to a project that will focus on moving research forward for osteosarcoma patients.
Browse our extensive list of osteosarcoma resources from MIB Agents and our partner organizations.
OsteoBites is a weekly webinar and podcast where we invite Osteosarcoma Experts and OsteoWarriors to share their research, hope, and innovation.
Agent GAMERS game with their fellow OsteoWarriors and OsteoSiblings.
Ambassador Agents are certified peer visitors who provide hope, understanding, and resources.
OsteoWarriors receive monthly letters of hope and cheer from MIB Agent Writers around the world.
When an OsteoWarrior transitions to hospice care, MIB Agents provides an experience or an item of comfort and entertainment.
The OsteoWarriors HQ (headquarters) brings kids and young adults who have a connection to osteosarcoma together and It. Is. Awesome!
A world with less toxic, more effective treatments and a cure for osteosarcoma.
We are devoted to creating and instilling hope with and for our inclusive and collaborative osteosarcoma community. We do this through mutual trust, transparency and compassion.
