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Stories of Hope

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Alexis

In 2008, I was 15-year old high school sophomore, who spent all my time playing competitive softball. I remember at the time I was experiencing constant knee pain, but thought it was because I had shattered my ankle a year prior.

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Amanda

My parents and sister were nearby when I woke up from a biopsy on August 11, 1987. Moments later, the words “You have Osteogenic Sarcoma” changed everything.

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Andrew

In November 2017, I began to have pains in my upper leg. I was active in sports, so we figured I had pulled a muscle. The pain got so severe it would wake me up in the night. We decided to see a doctor. After an Xray, MRI, and biopsy, I was told I had osteosarcoma.

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Ann

Ten years ago my husband and I were training for a marathon. I was the Director of Sales & Marketing for a luxury Hotel in New York, had a floral & event design company, three daughters aged 11, 15 and 20, and a sore leg – like a REALLY sore leg.

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Benjamin

My story begins in 1994, I was 8 years old. I was in great shape.

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Bridget

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Caitlin

My story starts in April of 2016. I was making cupcakes and decided to mix the batter by hand since I was too lazy to get out the mixer. The next day, I noticed that my right shoulder and bicep were sore. I thought it was sore from mixing the cupcake batter by hand but as the days went on and things didn’t get better, I knew something was wrong.

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Dominick

His Family Shares: Hi my name is Kim and my son is Dominick, he was diagnosed with Osteosarcoma when he was 6 years old. It all began with a limp that would not go away, after a visit to the doctor’s office we were told he had “growing pains”.

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Dr. Kurt Weiss, MD

In 1989, I was diagnosed with metastatic osteosarcoma at the age of 15. I had surgery to remove my right tibia and reconstruct it with an osteoarticular allograft. This was performed by the late, great Henry J. Mankin, MD, one of my most treasured mentors.

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Jarvis

I moved to America with my family when I was 10 years old. Five months after we arrived I was diagnosed with osteogenic sarcoma. Not knowing English made it very difficult for me and my family.

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Jeff

My name is Jeff , and I am a 6’8, 24-year old former high school basketball player from New Jersey. After graduating, my hope was to attend prep school, then continue my basketball career at a collegiate program.

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Kambre

I was 5 years old and it was my first day of Kindergarten in August of 2016. I slipped from the monkey bars that afternoon and injured what I thought was my hip. An X-Ray in the local ER that Thursday evening revealed no fractured hip, but did show the muscle pulled away from my bone right above my knee which indicated and later was verified to be diagnosed as Osteosarcoma.

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Kelly

My mother was dying of lung cancer in Oct ’06, while caring for her, my knee started to ache. I attributed the pain to my trying to move my mother to make her more comfortable. I took Motrin to help with the pain. My mother died on October 18th. The pain became worse.

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Lauren

In 2017, I was 14 and looking forward to the summer before my Sophomore year of high school. I was a runner, a discus thrower, and a member of the marching band. That was all put on hold when I noticed a lump on the side of my thigh and was diagnosed with Extraskeletal Osteosarcoma.

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Lillie

I’ve always loved horses. I started riding when I was 12 and got my own horse when I was 13. I loved to compete and started training 20 hours a week for U.S. Youth Nationals when my knee started to hurt. We figured it was all the riding and I kept pretty quiet about it for a while.

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Maeve

In 2011, I was eleven years old and in the sixth grade. I loved basketball and I played soccer and volleyball too. Unexplainable pain in my right tibia led me to the pediatrician after soccer practice.

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Mike

Cancer sucks, but you can still do what you love. I was 17, a freshman in college and diagnosed with stage-4 osteo in my left femur.

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Nicholas

Hi, my name is Nicolas Garnier, I am 39 years old, I live in Collegeville Pennsylvania, and I am a survivor of a pediatric osteosarcoma. Paris, France, April 1996 -I am in 10th grade, I love grunge music and riding motorcycles (no helmet) with my friends. I also like to bleach my hair.

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Ryan

Before I was diagnosed with Osteosarcoma, I was a competitive soccer player. In 2014, my world stopped. I was 17 years old and I had zero clue what my life would look like after Osteosarcoma or if I’d even be still alive.

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Sloane

When I was little I played all kinds of sports. My favorite was baseball. I played whenever I could, worked hard and played hard. When I was eleven I tried out for my brother’s 14U baseball team. I made it on, as the only girl in the league!

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Tim

My name is Tim Songster. In March 2017 I was twelve years old and had been having strange shin pains. We went to the doctor and had the worst news, I had a primary bone cancer called osteosarcoma. I was very scared and didn’t know how to react.

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We appreciate your assistance in helping patients find the support and education needed during their treatment for osteosarcoma.
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