Keely was diagnosed with Osteosarcoma in her proximal left tibia in early August 2018. She began chemo (MAP) almost immediately. Given only one choice for surgery (limb-salvage) by Rady Children’s, we traveled to UC Davis for a rotationplasty with Dr. Lor Randall. Her surgery was Nov 1, 2018. Complications ensued, and she did not restart chemo until mid-December – while at Davis. Ultimately, back at Rady, she lost her RP in March due to complications with Pseudomonas and is now an AKA. She wrapped up chemo in June ’19 and has tested NED since then. She is on a prosthetic and has a service dog named Wookie.
Mike and Lynda Hess are the co-founders of Mike Hess Brewing and we encourage all our fans and friends to support this fund, as well as the other amazing foundations we are involved with as a family and as a business. We thank you so much – more than can be expressed in this short note. Cheers to better treatments, drug regiments and research that leads to a cure.
FACTOR brings together the leading researchers, clinicians, surgeons, together with patient families and OsteoWarriors to Make It Better for those battling this disease.
Each year a grant of $100,000 is awarded to a project that will focus on moving research forward for osteosarcoma patients.
Browse our extensive list of osteosarcoma resources from MIB Agents and our partner organizations.
OsteoBites is a weekly webinar and podcast where we invite Osteosarcoma Experts and OsteoWarriors to share their research, hope, and innovation.
Agent GAMERS game with their fellow OsteoWarriors and OsteoSiblings.
Ambassador Agents are certified peer visitors who provide hope, understanding, and resources.
OsteoWarriors receive monthly letters of hope and cheer from MIB Agent Writers around the world.
When an OsteoWarrior transitions to hospice care, MIB Agents provides an experience or an item of comfort and entertainment.
The OsteoWarriors HQ (headquarters) brings kids and young adults who have a connection to osteosarcoma together and It. Is. Awesome!
A world with less toxic, more effective treatments and a cure for osteosarcoma.
We are devoted to creating and instilling hope with and for our inclusive and collaborative osteosarcoma community. We do this through mutual trust, transparency and compassion.