Ella Bee was a unique soul. Everyone who knew her described her as ’sweet’ and that is who she was at her core…but she was so much more. She was filled with love, hilariously witty, compassionate, insightful, determined (and maybe a lot stubborn), selfless beyond reason, creative, artistic, and the most loyal friend to those she loved. She didn’t say a lot but when she did speak, everyone listened. She never jumped in to a social situation, instead she would sit back and watch, taking everything in. She was an analyzer and an observer. She loved reading, gymnastics, crafting, solving riddles and puzzles, cooking, and, above all else, creating beauty in the world through her art and her actions. She loved fiercely and was devoted to family and friends. She saw value and beauty in every living thing. She was the kind of kid who would save a three legged grasshopper and refuse to throw away her Furby after it got ran over because it was “just fine. It just went blind and was deaf in one ear and forgot how to talk, but it’s perfect as it is”. To know Ella was to love Ella.
Unfortunately, in November 2019, Ella was diagnosed with osteosarcoma in her left femur. She spent years fighting through countless chemotherapies, medical interventions and surgeries (including her rotationplasty amputation that gave us Hank!) but never lost sight of who she was at her core. She stayed sweet, kept her humor, and always saw the beauty around her. Throughout her journey, she raised money to donate to fund osteosarcoma research and support families battling the disease. On June 26th, 2022, all of the pain and the trauma stopped. She has been made whole and is alive and well in Heaven while every single one of her tumors is dead, dead, dead. She won.
A world with less toxic, more effective treatments and a cure for osteosarcoma.
We are devoted to creating and instilling hope with and for our inclusive and collaborative osteosarcoma community. We do this through mutual trust, transparency and compassion.