Isaac's Osteosarcoma Family Fund

Isaac

Isaac was diagnosed with Osteosarcoma in his distal right femur in Oct 2021, the same week he turned 12 years old.

He is a sporty boy from young age across various sports including tennis, golf, football and swimming. He loves math, gaming and chess. Isaac has many good friends and a younger brother Lucas he loves very much.

The news of cancer was sudden and devastating for all of us.

We had a good multidisciplinary team and started the MAP treatment which failed as it made his tumor bigger with metastases to the lung.

By December 2021, we were advised by doctors to amputate his right leg above knee in order to save his life.

In January 2022 we started 2nd line chemo treatment also referred to as the OLIE trial (Ifos + Etop + Levantinib). His response to this treatment was stable and we planned bilateral lung thoracotomy in April 2022 to remove as many lung nodules as we can. We still have 19 nodules remaining in the lung which we are controlling with TKI and monitoring scan by scan.

He has just received his first basic prosthetic leg so he is rebuilding his physical strength and relearning how to walk. He is determined to walk back to school by Fall 2022.

During this very difficult time he learned many things:

  1. He learned about God, Bible and Christianity for the first time and has faith in God for protection, healing and peace.
  2. He got his first job in the Roblox world.
  3. He needs to be strong and look forward.

We are very proud of Isaac as our son, he is a strong warrior fighting this disease, looking for support and cure for Osteosarcoma.

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Our Mission

MIB Agents Is A Leading Pediatric Osteosarcoma Nonprofit Dedicated To Making It Better For Our Community Of Patients, Families, Medical Professionals, Researchers, And Industry Partners Through Programs, Education, And Research.
Supporting Doctors, Researchers, and the Medical Community
FACTOR Osteosarcoma Conference

FACTOR brings together the leading researchers, clinicians, surgeons, together with patient families and OsteoWarriors to Make It Better for those battling this disease.

Annual OutSmarting Osteosarcoma Grant

Each year a grant of $100,000 is awarded to a project that will focus on moving research forward for osteosarcoma patients.

Osteosarcoma Resources for you to give to patients

Browse our extensive list of osteosarcoma resources from MIB Agents and our partner organizations.

OsteoBites Weekly Webinar

OsteoBites is a weekly webinar and podcast where we invite Osteosarcoma Experts and OsteoWarriors to share their research, hope, and innovation.

Supporting Kids and Young Adults with Osteosarcoma
Gamer Agents

Agent GAMERS game with their fellow OsteoWarriors and OsteoSiblings.

Ambassador Agents

Ambassador Agents are certified peer visitors who provide hope, understanding, and resources.

Warrior Mail

OsteoWarriors receive monthly letters of hope and cheer from MIB Agent Writers around the world.

Missions

When an OsteoWarrior transitions to hospice care, MIB Agents provides an experience or an item of comfort and entertainment.

HQ at FACTOR Osteosarcoma Conference

The OsteoWarriors HQ (headquarters) brings kids and young adults who have a connection to osteosarcoma together and It. Is. Awesome!

Vision

A world with less toxic, more effective treatments and a cure for osteosarcoma.

Values

We are devoted to creating and instilling hope with and for our inclusive and collaborative osteosarcoma community. We do this through mutual trust, transparency and compassion.