Connective Issue #19

MIB News
Connective Issue #19

Volume 19 | March 6, 2024

We Can and We Will

With Spring just around the corner, we are all about embracing what this season symbolizes - hope, transformation, and growth.  

Please join us in welcoming our 2024 Junior Advisory Board, our largest group yet, with 20 members.

OutBid Osteosarcoma with us March 7-17 and shop our online auction to support our expanding programs.

While our OutSmarting Osteosarcoma 2024 research grant application is now closed - there are still lots of funding opportunities to support osteosarcoma research. Check out our funding directory.

We are less than 4 months away from FACTOR 2024 and can't wait to experience the collaboration and hope that is ignited when this community gathers in person. If you are reading this newsletter, then you belong there!

With so many things to look forward to, we also want to take a moment to reflect on 2023 and all that we accomplished together. Read our 2023 Impact Report to see the power of our community and how we can truly Make It Better when we work together towards a single goal. With all that we each bring to the table, we can Make It Better together, and we will.

With hope,


Save The Date

Our Community

What We Accomplished Together in 2023!

We are so proud to share our 2023 MIB Agents Impact Report which highlights the contributions and impact of our entire community. Without you and the astonishing volunteer hours and efforts from many, we couldn’t accomplish much. This work, this mission, belongs to all of us. Making it Better desires the hearts, hands, funds, gifts, and talents of many. Whether you gave from abundance or lack, you are seen, heard, accounted for, and wholeheartedly appreciated by the many whose suffering you are alleviating. Thank you. Your impact is great, and so are you.

Read our 2023 Impact Report

Register Now for FACTOR 2024!

Register now to save your spot at our FACTOR 2024 conference, June 20-22 in Cleveland. Registration is $335 for individuals and free for OsteoWarriors ages 8-22.  A limited number of Family Fund FACTOR Travel Awards are available for medical professionals. The application is open and due March 29th.

Register for FACTOR

Learn More About FACTOR

OutBid Osteosarcoma With Us!

Join us for our 4th annual OutBidding Osteosarcoma auction, featuring exclusive items and experiences! Our incredible donors who Make It Better for kids with osteosarcoma have contributed generously with wonderful and one-of-a-kind items in Original Art, Home Goods & Beauty, and Unique items & Experiences. We encourage you to share the OutBidding Osteosarcoma auction link and details with your family, friends, and community. Together, we can Make It Better!

Bidding opens on March 7th and ends March 17 at 5pm ET.

Shop the Auction

MIB 2024 Junior Advisory Board

We are delighted to introduce the 20 members of our 2024 MIB Agents Junior Advisory Board (JAB) board, led by President, Camille Wahl and Vice President, Max Penzer! Our JAB members are the heart of our organization and serve as a voice for young adults in the osteosarcoma community to help influence the direction of MIB Agents programs, education, and research for the benefit of all OsteoWarriors, families, doctors, researchers, and industry. JAB Members serve a term of one year and meet monthly. In addition to helping build current programs and design future programs to meet the unique needs of OsteoWarriors and their families, JAB members participate in Childhood Cancer Alliance Action Days in Washington DC, represent patient voice in industry and academic patient panels, and create awareness via the MIB Agents osTEAo AYA podcast.

Learn about our 2024 JAB Members

Career Connections

If you have a job posting and you would like it included here, please email


OsteoBites Webinar Series

Mar 7 | Jennifer Mack, MD, MPH
Patient Perspectives on Participating in Research and Clinical Trials
Mar 14 | Donghan (Mo)Yang, PhD
Osteosarcoma Explorer: A Data Commons With Clinical, Genomic, Protein, and Tissue Imaging Data for Osteosarcoma Research
Mar 21 | osTEAo AYA podcast
Patient Experiences with Lung Surgery for Osteosarcoma
Mar 28 | Damon Reed, MD
COG 2023 Blueprint for Research on Bone Tumors

Watch Past Episodes and See the Upcoming Schedule

Tumor Review Board for Osteosarcoma

A virtual tumor review board for osteosarcoma, TURBO is open to global clinicians or researchers with an interest in osteosarcoma. Patients and families are welcome to ask their oncologists to present a case on their behalf. Join TURBO to request an invite or submit a case.

Next meeting: March 20th at 5pm ET


Osteosarcoma in the News


Osteosarcoma: De Nuestras Familias a la Suya

We are delighted to announce the release of the new and improved third edition of the Spanish language handbook Osteosarcoma: De nuestras familias a la suya.  As with all MIB programs, there is no charge to receive a copy, which is accompanied by wonderful OS and cancer resources in Spanish from MIB and our partners!

Estamos encantados de anunciar la disponibilidad de la nueva y mejorada tercera edición de Osteosarcoma: De nuestras familias a la suya. Como ocurre con todos los programas MIB, no hay ningún cargo por recibir una copia, que viene acompañada de maravillosos recursos en español, sobre el osteosarcoma y el cáncer de MIB y nuestros socios.

Order the Handbook

¡Solicite copias aquí!


Research Funding Opportunities

Our OutSmarting Osteosarcoma 2024 grant cycle is already underway, but there are still lots of funding opportunities for osteosarcoma research! Check out the MIB Agents directory of Funding Opportunities. Some upcoming grant deadlines:

Find Funding Opportunities

Should You Join a Clinical Trial?

Check out a new blog from the Sarcoma Patient Advocacy Global Network (SPAGN) that reviews questions patients should ask when considering a clinical trial.

Find Osteosarcoma Clinical Trials

If you have a trial that is currently enrolling osteosarcoma patients, please email

All MIB Agents programs are free of charge, thanks to our generous donors like you who Make it Better.
Please consider a donation to support osteosarcoma patient programs, education, and research.


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