Volume 14 | October 4, 2023
We all have our Because Ofs - what motivates us to Make It Better for those suffering from osteosarcoma. Whether it is a dear friend or family member whose struggles you witnessed firsthand, a beloved pet who succumbed to this disease, a patient who changed the way you think about cancer care, or perhaps a desire to help an underserved population, we all have our Because Ofs that inspire us. This month, we share some of our Because Ofs:
MIB Agents Family Fund holders Bronwen and Michael Greene share why they are asking their local community in Greenville, SC to display gold bows Because of Ian to fund osteosarcoma research.
Thank you for Going Gold with us this September! Thanks to our community, bows around the country are raising awareness for pediatric cancer and supporting osteosarcoma programs, education and research.
Gillian Okimoto is an OsteoWarrior and member of the MIB Agents Junior Advisory Board, and her dad Kyle is running the NYC marathon on November 5th to raise money for MIB Agents to support osteosarcoma programs, education, and research #Because of Gillian and #Because of Ally. We asked the Okimotos to share their osteosarcoma story, the inspiration behind Kyle’s fundraiser, and with the benefit of hindsight, their tips and advice for other osteosarcoma families.
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A virtual tumor review board for osteosarcoma, TURBO is open to global clinicians or researchers with an interest in osteosarcoma. Patients and families are welcome to ask their oncologists to present a case on their behalf. Join TURBO to request an invite or submit a case.
Next meeting: November 8th at 5pm ET
If you can't make TURBO or have other sarcoma cases, the SARC Multidisciplinary Tumor Board (SMTB) provides innovative multidisciplinary discussion for adults and children with sarcoma at any stage of the disease. The monthly sarcoma tumor board meeting involves physicians specializing in sarcoma across disciplines and may be presented by the physician at any step along the cancer journey. If you have any questions about this form or the submission process please email Lindsey Overman at firstname.lastname@example.org.
El programa Agentes Embajadores de MIB conecta a pacientes de osteosarcoma y sus familias con sobrevivientes y sus familias. Los Agentes Embajadores han atravesado el camino de osteosarcoma y se han dedicado a brindar apoyo y esperanza a individuos que actualmente están recibiendo tratamiento.La mayoría de familias sienten una gran desesperación, como si estuvieran solos en una caverna o en una zona de guerra. Nuestros Agentes Embajadores están allí para apoyarlos. Por favor, únase a este grupo de voluntarios especializados. El primer paso es leer más sobre Agentes Embajadores e inscribirse aquí.
Programaremos entrenamientos por medio de Zoom y en persona en el año nuevo.
The OutSmarting Osteosarcoma Research Grant is an annual award begun in 2017. Since then, MIB Agents has supported eighteen investigators and awarded $1,550,000 to support osteosarcoma research. The OutSmarting Osteosarcoma 2024 research grant application will open on October 26, 2023. Applications are due January 26, 2024, with notification in May 2024. Awards include a $100,000 one year and a $50,000 Young Investigator one year grant. Collaboration among the scientific and patient community is a key hallmark of MIB Agents. MIB Agents OutSmarting Osteosarcoma grants are supported by MIB Agents Family Funds, osteosarcoma patients and families who raise funds in honor of an OsteoWarrior or OsteoAngel. Their dedication to Making It Better and fostering collaboration and education in the scientific community makes every MIB Agents award incredibly meaningful.
Bone Cancer Research Trust & Hannah's Willberry Wonder Pony Charity are delighted to be working together to offer funding of up to £250,000 to support clinical or translational projects focused on improving outcomes for osteosarcoma patients. Funding is available to researchers and/or clinicians working in an academic or clinical institution in the UK, however, international collaboration is encouraged where appropriate. As part of this funding call, we welcome applications for funding to support 1) translational projects up to a maximum value of £250,000., clinical PhD studentships, with a particular interest in supporting oncology or surgical trainees up to a maximum value of £250,000., and academic PhD studentships, with a translational focus, up to a maximum value of £140,000. The closing date for this funding scheme is 5pm on the 13th November 2023 and awards are likely to be made in Q1 2024.
If you have a trial that is currently enrolling osteosarcoma patients, please email email@example.com.